Friday, January 29, 2010

Head & Neck Cancer Resources

I spend my fair share of time on the www. I have come across two websites recently that have stood out above the fray. One is dedicated to head & neck cancer; the other is for a wide range of cancers.

The first is the Oral Cancer Foundation at…

http://oralcancerfoundation.org/

They have the most complete site dedicated to H&N cancer for everything from diagnosis to rehabilitation. The section on “Emotional aspects” and within that “Survivors – What Now?” is what caught my attention. Here’s a link directly to that section (it has 2 parts)…

http://oralcancerfoundation.org/emotional/survivors_1.htm.

Until one goes through this experience, it is difficult to fathom the impact it has on one’s psyche. This section resonated with me and confirmed that I am not overreacting to my current circumstances. I found it helpful and wanted to pass the information on to others.

The second site is CancerCompass at…

http://www.cancercompass.com/

They have an active forum (message board) section covering 35 different cancers. The direct link to this section on their website is…

http://www.cancercompass.com/message-board.htm

In reading the posts and responses for head & neck cancer, this site has quickly grown an active and knowledgeable community that has been there and done that. I can’t speak directly for the other cancers, but I doubt you will be disappointed. Again, it covers the gamut from diagnosis to rehabilitation. There are also caregiver perspectives.

Dealing with cancer is tough. But, these sites make it a bit easier.

Take care.

Ed

3 comments:

Brian said...

I wanted to thank you for linking to the content in a portion of the OCF web site. I'm pleased that you find value in it. Please note that that portion of our website was authored by one of the leaders in psycho-oncology at Memorial Sloan Kettering Cancer Center prior to review by our science advisory board.

As a side note, OCF also has the largest patient to survivor h&n message boards and forums anywhere, populated by some extremely caring people that have walked this path and come back to help others. There are over 6,000 posters that use the boards. The boards are free, anonymous, and moderated by doctors and nurses (some who are oral cancer survivors themselves) to ensure that any information there will not only be appropriate, but not potentially harm any individual. Obviously, the information there is meant to help offer work arounds that other patients have discovered when the inevitable complications of treatment arise. It is heavily trafficked by "newbies" to our cancer family, and is a great resource for sorting out the what now kinds of questions with others, again with first hand experience. The link to the forums is this http://oralcancerfoundation.org/forum/index.htm

Anonymous said...

Nice post and this mail helped me alot in my college assignement. Thanks you seeking your information.

Anonymous said...
This comment has been removed by a blog administrator.